A few people have asked how things are as I've been a bit silent lately, so here goes...
Am having increased cognitive difficulties with typing and working out what to say/how to say it - hence v v badly written post and lack of proper explanations of things - sorry! And have been less able to keep in touch with people by email/text/fb etc lately - sorry for that too! Not good as typing is my main method of communication with most people - phone and in person is v difficult and
draining. The typing issues are poss due to spending too much time on logic puzzles - being more disciplined about game time today seems to have helped, which is why I'm able to write this update - gutting that I can't play the puzzles so much as they gives me headspace from my brain stewing about issues/stresses, but nice to have one issue I have some level of control over! Hopefully continued discipline will allow me to write properly soon!
Generally, tho, I have been a bit less fragile. Had a bad day a couple of weeks ago due to adrenaline from social worker visit, but nowhere near as bad as previous bad days, the next day I was a lot better, and the day after that was pretty much back to my normal - usually takes several days minimum to recover.
Have been able to watch a bit of TV some days, and am possibly a bit less sensitive to light.
Made scrambled egg in the microwave in my bedroom today - big achievement - more 'cooking' than I've managed in months. And to be able to cope with doing that and typing this all on one day is huge. Will find out in next few days if I've overdone things!
Am now on highest dose of a B complex vitamin capsule - seems to be helping yay! Which might be why I'm a bit better in the ways mentioned above.
Much more important news: my new baby nephew Isaac has been born *big grin*! 11 days (I think?) overdue - lots of tenterhooks while waiting for news! (And lots of sympathy for my sister - it's been very hot and he is a v big baby, and she was was desperate to give birth!) Many memories and renewed grief about the death of one of his brothers 3 years ago at 3 days old. But baby Isaac is healthy, is doing really well, and is absolutely gorgeous. Don't want to think about how long it might be until I can meet him, but have seen him on skype. :-) :-) :-)
Stairlift: ridiculous delays/bureaucracy. It's going to be a while!! Months? Hmmppff and grrrr.
Care package increase??? - waiting and not knowing has been stressful and draining. Social worker visiting tomorrow - hoping she'll give us their decision. Watch this space!
3 year old daughter E is v tired - behaviour not great lately - exhausting for Andy (husband) and me. Probably due to it being close to end of term. Week's break soon - yay! - thanks to my parents having E to stay for a week. We hate her going away and miss her lots but are very very grateful for the break.
Summer holidays looming - eeek re: noisy kids playing outside (sound sensitivity is a big problem), and also eeek re: needing to organise care for E as pre-school only open in term time. Praying social services agree and arrange funding for E's care ASAP!
Today E and I shared this year's first two ripe tomatoes from our garden - yum :-)