28 August 2014

Note to self...

Do not attempt to eat soup while someone is hoovering. Even with ear plugs in. Especially not when they've just changed your bedding. And especially not tomato based soup that leaves a livid orange stain on the nice clean fresh bedding.

27 August 2014

Parenthood and M.E.: A Difficult Combination

I first realised how much I really wanted to be a mum when the doctor sat on my hospital bed, told me what they'd found in the gynae surgery I'd had the day before, and gently imparted the news that I was highly unlikely to ever conceive, and if I did, there was a high risk of me having an ectopic pregnancy. I howled. Right then and there, in front of this poor kind doctor and with only a thin curtain between myself and the other patients on the ward, the bottom dropped out of my world and I howled and sobbed my heart out.

25 August 2014

Unspoken Words

I've got so many posts that I want to write, so many thoughts I want to express. I feel like the muted, suppressed violin. So far, at last count, I think I've got about 16 posts that I'm in the process of writing, on a whole variety of topics. Some of those are almost finished or partly finished; some are just a collection of thoughts; some are just a title or a single thought that I want to write about. I don't know when I'll manage to actually write or publish another proper post, but hopefully it won't be too long.

In the meantime, I thought I would share something that I found amusing. My

8 August 2014

8th August is Severe ME Remembrance and Awareness Day

Today, 8th August, is Severe ME Remembrance and Awareness Day for all those who have lost their lives to this horrific disease, and for those still living with it.

People who knew me before I was ill may think my situation is bad (and don't get me wrong, I'm not saying it's great), however I honestly count myself as fortunate as I know so many others who have much, much more severe ME than I do. I know of people who have died from it, I know people who literally only have days to live, and I know people for whom every day is a living nightmare.