I Have News! (And, Finally, Some Progress!)

Some of this news is actually 'olds', and I'm really sorry to my family and friends who have been waiting to hear about stuff. It's just taken me a bit of time to get my act together. Also this was meant to be just a quick happy update post but I guess I needed to get a load of stuff off my chest - sorry!

Where to start?

Note to self...

Do not attempt to eat soup while someone is hoovering. Even with ear plugs in. Especially not when they've just changed your bedding. And especially not tomato based soup that leaves a livid orange stain on the nice clean fresh bedding.

Parenthood and M.E.: A Difficult Combination

I first realised how much I really wanted to be a mum when the doctor sat on my hospital bed, told me what they'd found in the gynae surgery I'd had the day before, and gently imparted the news that I was highly unlikely to ever conceive, and if I did, there was a high risk of me having an ectopic pregnancy. I howled. Right then and there, in front of this poor kind doctor and with only a thin curtain between myself and the other patients on the ward, the bottom dropped out of my world and I howled and sobbed my heart out.

Unspoken Words

I've got so many posts that I want to write, so many thoughts I want to express. I feel like the muted, suppressed violin. So far, at last count, I think I've got about 16 posts that I'm in the process of writing, on a whole variety of topics. Some of those are almost finished or partly finished; some are just a collection of thoughts; some are just a title or a single thought that I want to write about. I don't know when I'll manage to actually write or publish another proper post, but hopefully it won't be too long.

In the meantime, I thought I would share something that I found amusing. My

8th August is Severe ME Remembrance and Awareness Day

Today, 8th August, is Severe ME Remembrance and Awareness Day for all those who have lost their lives to this horrific disease, and for those still living with it.

People who knew me before I was ill may think my situation is bad (and don't get me wrong, I'm not saying it's great), however I honestly count myself as fortunate as I know so many others who have much, much more severe ME than I do. I know of people who have died from it, I know people who literally only have days to live, and I know people for whom every day is a living nightmare.

Scrambled whistle-stop update

A few people have asked how things are as I've been a bit silent lately, so here goes...

Am having increased cognitive difficulties with typing and working out what to say/how to say it - hence v v badly written post and lack of proper explanations of things - sorry! And have been less able to keep in touch with people by email/text/fb etc lately - sorry for that too! Not good as typing is my main method of communication with most people - phone and in person is v difficult and

The devastating reality of severe ME

I'm not even sure how to introduce this. If you are in any doubt about how severe and progressive ME can get for some people, click the link below to read a post from someone in the final stages of their ME journey. I don't know what my future holds or when/why I will be in my final days; I can only hope that, when my time comes, I face it with the grace and courage that she is showing. She is a huge inspiration to me.

http://documentingme.net/2014/07/11/final-stages/