Scrambled whistle-stop update

A few people have asked how things are as I've been a bit silent lately, so here goes...

Am having increased cognitive difficulties with typing and working out what to say/how to say it - hence v v badly written post and lack of proper explanations of things - sorry! And have been less able to keep in touch with people by email/text/fb etc lately - sorry for that too! Not good as typing is my main method of communication with most people - phone and in person is v difficult and

The devastating reality of severe ME

I'm not even sure how to introduce this. If you are in any doubt about how severe and progressive ME can get for some people, click the link below to read a post from someone in the final stages of their ME journey. I don't know what my future holds or when/why I will be in my final days; I can only hope that, when my time comes, I face it with the grace and courage that she is showing. She is a huge inspiration to me.

http://documentingme.net/2014/07/11/final-stages/

Sad endings and hopeful new beginnings...

Sad endings...
Today we had the last ever session with our Home Start worker, Teresa. For the last six months she's been visiting once a week to play with my daughter, E, so that I could watch E play - something I really miss. E gets lots of fun and stimulation at pre-school and out with friends of mine, but I don't get to see it; having visits from Teresa has been wonderful. She has given us priceless memories, and has been very encouraging and supportive to me. I can't really believe her time with us has come to an end. We bought her some flowers, and my husband helped me make

Hope deferred...

Sometimes you don't realise how much you're looking forward to something until it doesn't happen.

Rant

I'm writing this because I just need to get it out of my head. Because it's 4pm and I should be asleep at this time, especially as I haven't slept properly so far today and I'm already exhausted from a tricky week and if I don't get some sleep soon I won't be able to sleep tonight - but I can't sleep. Because I can't seem to process this stuff in the privacy of my own mind and let it go. Because my heart is thumping and I can't seem to relax. Because I feel like crying (ok, I AM crying), and I know it's silly, I know they didn't mean it, I know they didn't understand what they were saying... but I just need to get it out of my head so I can relax and get some rest. I don't know if I'll actually publish this or not, but I definitely need to write it.

People say things they don't mean. I know that. I know they just say the first thing that comes into their heads. I know they're just trying to make conversation, to fill up what they see as an awkward silence. And what I need to vent about is by no means the worst unthinking comment I've ever heard; the prize for that probably goes to the person who told my sister,

Parenting Problems #2: issues with my daughter's health

OK, so I know that in this post just a matter of hours ago, I said that there would probably be more 'Parenting Problems' posts in the future - but I wasn't expecting to need to write one quite so soon!

Parenting Problems #1: getting my child to the doctor.

I'm calling this 'Parenting Problems #1' because I suspect there will be many more to follow...!

So. The day I've been dreading has finally arrived: I realised yesterday evening that my 3 year old daughter E needs medical attention. She almost certainly has a UTI. Yay(!) (On the plus side, I'm hoping that this at least explains some of her recent difficult behaviour!)

When I realised about the UTI, my first thought was, "Oh, poor thing!", closely followed by, "What on earth am I going to do about it?!!"